family systems theory: families are _______
interdependent
Owens, Marinella, & Metz 2015: a patient might spend __ hours a week with an SLP and __ awake hours with family
2; 110
May 2013 dept. of labor: people __ years and older without disabilities= __% unemployment rate
16; 6.9
May 2013 dept. of labor: people __ years and older with disabilities= __% unemployment rate
16; 13
what kinds of contracts do marriages have?
verbal and nonverbal
what is dream when you get married?
live happily ever after successful family nice balance: personal life/career nice home be together forever plenty of \$\$ good retirement
factors in preserving marriage: when ____ is mild; tolerable substitutions made for lost activities; if well spouse is prone to nurturance, he/she ____
disability; easily slips into caregiver role
working with spouses: pay lots of attention to who?
well spouse- educate and support him/her
working with spouses: include spouse in what 2 areas?
assessment and treatment
working with spouses: let spouse ___; provide _____
vent; a support group
Cabon & Cohn 2012: if one spouse has a degenerative disease, the well spouse has to simultaneously do what 2 things?
take on extra burdens
promote sick spouse’s independence as much as possible
working with parents: 2 most important variables in CH’s improvement are parents’ ____ and _____
personal qualities; strength of their marital relationship
working with parents: list some parents’ personal qualities (7: a-t)
adaptability communication humility patience proactive resilient teamwork
when a CH is born with a disability, ____ is most destructive to a marriage
anger
term for: when parents fight over little, unrelated things
displacement
with guilt comes the _____
supereducated parent
when a CH born with a disability, men are seen as the what?
family protector
feel helpless and deny reality; may turn to affairs/work extra hours
when a CH born with a disability, many women do what?
postpone/lose careers
give parents permission to _____
take care of themselves
if parents are happy as ___ and ____, CH will be better off
individuals; couples
research has found: families with higher ___ have more choices for coping/more varied support
SES
research has found: greater stress: parents who felt that their caretaking responsibilities for disabled children took time away from ____
their spouse, other children, self
research: caring for a chronically sick/disabled child accelerated ____ in mothers
aging
research: CH’s ____ problems causes parents far more stress than child’s ____
behavior; cognitive delays
research: what is helpful in decreasing stress?
respite care
research: parents of disabled ____ experience more stress than parents of disabled ____
boys; girls
Naseef, NA, 2001 wrote a book about being father of severely autistic boy. he interviewed couples who had a disabled CH and found that men wanted women to understand they were _____ and ___ when they couldn’t make things better
doing their best; frustrated
men wanted ____ with their wives as couples
more time alone
men wanted women to be more ____ and ____
rational, less emotional
men wanted ____ responsibility for special needs CH; women need to ____ and let men help
more; get out of the way
Naseef, NA, 2001 found that women wanted men involved in CH’s ______; tired of going to ___
education; meetings alone
women wanted time by themselves to ____
relax without CH
women want to talk about their _____ without men getting _____
feelings; defensive
women wanted men to develop a better ____ of their CH’s special needs and not _____
understanding; leave everything to them
Tiegerman-Farber & Radziewicz found that mothers often felt ____ with their CH
overwhelmed
Tiegerman-Farber & Radziewicz found that mothers often felt no time to spend with ___ or ___
SO; other CH
Tiegerman-Farber & Radziewicz found that mothers often felt no time for ____ so stressed out
myself
Tiegerman-Farber & Radziewicz found that mothers often felt that their husband feels: along with cooking, cleaning, disciplining, our _____ is my problem/responsibility
special needs CH
Tiegerman-Farber & Radziewicz found that mothers often felt “I am concerned my husband is ___ of our CH”
afraid
Tiegerman-Farber & Radziewicz found that fathers often felt _____ which is my primary responsibility; wife takes care of ____
I work; kids
Tiegerman-Farber & Radziewicz found that fathers often felt “i try to help my wife but she is more ____”
effective
Tiegerman-Farber & Radziewicz found that fathers often felt “my son listens more to ____”
my wife than me
Tiegerman-Farber & Radziewicz found that fathers often felt “after working all day, i don’t want to be bothered with the _____ in the house”
noisy havoc
Tiegerman-Farber & Radziewicz found that fathers often felt “i need to ___ in morning, can’t stand confusion/screaming/mess”
go to work
Robinson, T. (2015) tips on delivering bad news: sit where in relation to parents?
next to them
Robinson, T. (2015) tips on delivering bad news: never disagree with ____ in front of ____
professionals; parents
Robinson, T. (2015) tips on delivering bad news: if parents are resistant to ____, explain that ST is old enough to be involved and there will be more buy in if s/he understands
labeling